Upcoming Events

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Upcoming Events

18 May

Marfan Syndrome and Aortopathy 2019: Conference for Doctors and Patients

The Prince Charles Hospital Education Centre, Rode Road, Chermside

8:00am to 3:30pm

This is a free event. Please RSVP by email early as places are limited: TPCHMarfanAortopathy@health.qld.gov.au

Keynote speaker: Prof Richmond W. Jeremy

  • Professor in Medicine (Cardiology), University of Sydney
  • Director, Marfan and Aortic Disease Clinic at Royal Prince Alfred Hospital
  • President, Cardiac Society of Australia and New Zealand

Supported by:


11 Jul

Marfan Foundation 35th Annual Conference

Houston, Texas, U.S.

11 to 14 July, 2019

Each year, our friends at Marfan Foundation in America holds an annual conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.

They offer specialised programs and workshops for people of every age, including children, teens, young adults, and older people. In addition, they offer conference attendees free medical assessments, which they make possible in conjunction with the medical institution that co-hosts the meet with them and their dedicated medical advisors, who are the leading doctors on Marfan syndrome and related disorders from across the U.S. This is a unique offering that is truly a benefit for those who do not have access to expert medical care near their home or lack healthcare coverage. And, we offer scholarships for first-time conference attendees.


Discounted early registrations are open until 15 June 2019. You will still be able to register after this date.


Visit the Marfan Foundation’s conference website for more information on the programs and registration fees: Marfan Foundation 35th Annual Conference